Updates on Laurel: October 2005

 
More or less as posted on the November '00 Playgroup or the "Over 35 and Hitting Our Stride" board on Network54
 
October 8, 2005

I'm sitting here with the phone off the hook so my mother won't call me...it's a long story with more to it, but it's 12:30 AM so I'll just tell you the end of our phone conversation which went:

Her: I guess I'd better get rid of the cats, go into a nursing home and sell the house. What do you want me to do?

Me: All I want is to get a person to come clean your house!

Repeat sequence another four or five times; then final line:

Me: All I want to do is get a goddamn person to clean your goddamn house! GOODBYE!

After I got off the phone, I jumped up and down in the hallway for a few moments while letting out a primal scream. Then I walked into our home office, looked at Bob and said, "I have to call my sister." Which I did, and while I was on the phone I could hear call waiting beeping a number of times. As soon as I got off the phone the phone rang twice within about five minutes; both times the voice came over the answering machine:

"Oh, hi, it's your mother. I just wanted to find out what you and your sister decided to do with me. Goodbye."

I CAN'T deal with her at freakin' midnight with a freakin' small child who's still awake and all wound up from the excitement already (I finally got her to bed a few minutes ago). So I took the phone off the hook. Tomorrow will be another day...

 

October 10, 2005

Those of you who work or have worked in an office...have you had to have everything you hang on your office wall approved by someone? Our office moved in August, and today it was announced that in order to maintain our image nothing hung with pushpins is to be allowed, everything must have frames, and all is to be approved by one of the assistant directors. Now, I had nothing more nefarious planned than a few of my matted and framed former county fair entries, but this is burning my butt on general principles. I'm also wondering if they're expecting me to frame my calendar? (Part of me wants to, just to make a point that they're being idiots.) So, this seems control freakish to me, but I'm wondering if in my limited employment history I'm missing something and it's common?

 

October 11, 2005 (10:46 AM)

So what I'm doing now on the mother front is 1) trying to talk to the owner of the service and get his version of the story (unfortunately he was out yesterday and will be out today, although his office manager is supposed to call me today) 2) if he really did tell her he can't serve her with the cats there, I'll try calling the other service (the one whose first choice pulled a no-show at the interview), level with them about the litter box situation, and find out if it's something they can deal with. If not...well, Marie is all ready to use this to say she has to move. I'm more thinking, she probably has to get rid of the newer cat (the one with the litter box problem). Mom actually called me Sunday saying she'd been worried sick all weekend - she had gotten herself convinced that the owner of the service was going to MAKE her get rid of the cats! I told her he couldn't do that, but that there was a real issue that sooner or later the cats will probably need to be rehomed (I mean, she's 79, the cats are I think something like 2 and 4), and while my sister had already promised to take the older cat (before Mom had the other one), neither one of us wants the one with the potty problems. She wanted me to PROMISE to find a home for that cat. Right now I have an e-mail in to a very strictly no-kill shelter that I know is totally overwhelmed at the moment (having taken in some huge number of animals from an old lady who wasn't taking care of them), but I'm hoping they'll have some ideas for me on what one does with a cat like this. Maybe a barn cat? Meanwhile, Marie wanted to look into ways to force the issue with Mom moving, and we were supposed to check in with each other sometime this week.

Wow, sorry, that turned into a book. Bob and I went on an apple- and pumpkin-picking field trip with Laurel's class yesterday - it went pretty well through the hayride, pumpkin picking and picture taking, up until the part where we were trying to push the wheelchair down to where the apples were. But the ride was bumpy and I think a bit scary and Laurel was getting cold and she started to cry, so we aborted that and "picked" apples out of boxes instead.

OK, time to end my book and get to work...

 

October 11, 2005 (7:34 PM)

OK, we need lots of positive thoughts here for Laurel's med change...

I finally talked to the neuro's assistant today, and Bob went a couple of rounds with her nurse. We are going to put Laurel on a second seizure med called Topamax (the one she's on is Depakote). We are supposed to increase her dose by 1/2 tablet every five days until she's up to 3 tablets/day (we'll have to crush the tablets, of course). I wish we didn't have to do this - possible side effects include sleepiness (like all anticonvulsants), cognitive effects, and problems with the eyes including glaucoma (and I'm not sure I could tell if she was doing worse visually...her speech therapist said to me Friday that she felt Laurel wasn't visually attending as well and I've been suspecting the same thing. I had a lot harder time getting her to pick her Halloween costume [by choosing between pictures] this year than I did the last two. I suppose we should haul her to an eye doctor and make sure there isn't a physical cause). But Lamictal can cause a rare but fatal rash which is more likely in combination with Depakote, and Keppra isn't known to be effective for general seizures (which Laurel's EEG showed even when we didn't see evidence of seizures), plus it can cause behavior problems. And not adding a med is not feeling like an option anymore - in the last two weeks she's had two long (50 - 60 sec) seizures. With the exception of that one after the asthma attack at my mom's house before Christmas we hadn't seen any long ones since 2001, so this is freaking us out.

In other news, my mom called both my home and office (didn't happen to catch me in either place, I think I was nuking my coffee at the time) to tell me that the woman from the service didn't come to change her cat litter and take her shopping. This of course being the same service that Mom told me on Friday wouldn't come unless she got rid of the cats (still haven't gotten to the bottom of that one - the owner's been out the last two days and his office manager was supposed to call me today and didn't). Whether that's true or not, she thought so, so why would she be expecting someone? I think she is really, really losing it...

Anyway, please pray/think positive thoughts/send a message to the universe that the new med will get rid of Laurel's seizures and not have any side effects. And if you've got a few spares that the situation with my mom resolves, those would be good, too...

 

October 12, 2005

Well, I called Mom last night and it wasn't QUITE as bad as I was afraid. It wasn't that she thought that that service she called me about Friday night was going to send someone, it's that she had thought I had someone from another service who could come. I sort of see where she got that, because I'd talked about trying the other service again (the one whose employee didn't come to the interview) if it was really true that Service A had said what she reported. But obviously she had made some leaps from what I said, which does seem to be happening more often lately. Not to mention the paranoia about her cats, although she didn't mention it last night. My sister told me though that she wasn't too sure she was going to come east for Thanksgiving and bring Mom down to see us after all, because Mom didn't want to have someone sit the cats, she wanted to bring them with! UUGGGGHHHH, what a thought.

Anyway, it was something of a relief to know that she hadn't forgotten something that had had her that worked up, but still - it's becoming increasingly obvious that her brain isn't working the way it used to...

 
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