Updates on Laurel (and other stuff): November 2006

 
More or less as posted on the November '00 Playgroup or the "Over 35 and Hitting Our Stride" board on Network54
 
November 2, 2006 

HAH!! I have a response to my e-mail...

was just cc:ed on a memo to our Commission (which meets tonight) requesting $10,500 from our localities (we're a regional agency that covers six local governments) for solid waste/recycling planning! Of course, that's no guarantee that they will fund it, but at least now the effort is being made. I'm SO danged pleased with myself...

 

November 11, 2006 

Happy 6th birthday to Laurel!

We are so proud of all she is accomplishing lately! Last night she ate several florets of cut-up but unpureed broccoli. She's a sad girl this morning, though, so I hope she cheers up! Laurel and I have had something pretty much continuously for about three weeks now (not the same bug - I think we've been through at least two), and Miss Laurel is still not feeling her best. But we're hoping she'll be up for going to the Virginia Safari Park today.

Here are some blast-from-the-past pictures of Laurel:

2 days old


2 weeks old


1 year old


2 years old


3 years old


4 years old


5 years old (I don't seem to have a birthday picture! I think she was a sad girl on her birthday last year, too. Here's the one from our Christmas card, that was taken one month later)


6 years old (from yesterday's party at school - not a happy camper then, either!)

 

November 15, 2006 (9:51 AM)

I have to show you guys what I've been working on the past two evenings!

In Laurel's class, the birthday child gets to be "Star of the Week" (Laurel's didn't start till today, because they were off Monday and Tuesday last week, then a little boy whose birthday was the day before hers was Star of the Week). I found out last week that this meant that Mommy got to make a poster to hang in the class. Below is a picture of the fruits of my labors. Bob says he thinks I'll pass kindergarten! (He also asked, "Does this make her a poster child?" )

 

November 15, 2006 (11:38 PM)

Bad news/good news day...

First the bad news. We took Laurel to a second-opinion orthopedist today, one that was recommended by my chiropractor as someone he often exchanges patients with so it seems likely he's not a real slice 'em dice 'em guy, but we got exactly the same opinion. Laurel needs the surgery on her leg and hip. I have to admit, looking at the x-ray, I can't really see that there is any other way to fix it either. If we had caught this when it first started...but it's too late now. I feel so sad for her - I'm sure this is going to hurt a LOT, and then she has to wear these long-leg casts that will keep her legs splayed for four weeks. We'll have to rent a special wheelchair for her, and apparently she'll have to ride in the car on her side in some sort of special vest that hooks into the seat belt. I have no idea how much of the time she'll need to take off school. This is going to be such a nightmare! I just feel ill thinking about it. Seriously. The surgery is scheduled for January 8.

OK, the good news. This may not seem to be such a big thing, but for me, it's hugely symbolic. Tonight for the first time, she ate her own birthday cake! Not just the frosting, but the actual cake! We didn't want to try it without her speech therapist, but she came tonight and Laurel calmly chewed and swallowed some bites of actual birthday cake like it was no big deal. Along with some more unpureed broccoli and some pureed fruit to wash it all down with. Unfortunately, I was at Special Needs Moms' Night Out and missed it all! But to me it's SO big to know that she ate birthday cake, because when the doctors told us that they wanted to place the g-tube, one of the things that flashed through my mind was a picture of a sad girl who never got to eat her own birthday cake. So to me, it's a milestone!

 

November 24, 2006 

Some scenes from our Thanksgiving...

It wasn't all warm fuzzies - I spent most of the day with Laurel while Bob cooked dinner, and she was cranky or tired for a good chunk of the day. But the day did have some highlights, and here they are:

OK, this hand turkey may not look like much to you. I'm sure most 6-year-olds are doing a WAY better job of coloring. But all of the coloring on the bottom part of the page was done by Laurel holding the crayon all by herself - a first!


For the first time, we brought Laurel's wheechair up to the table and tried to feed her part of the dinner as we were eating it. Laurel's favorite part of the dinner, though, was the sound of plates scraping, which for some reason is just the funniest thing to Laurel:


I have to say that I think unpureed turkey is still a little too advanced for Laurel. The jellied cranberries were a huge hit, though. Made all the better for me by the fact that Bob got to feed them to her (having finished his dinner first, because I'd been busy trying to feed Laurel turkey and stuffing and gravy) and he can't STAND them. I think he must have said "No accounting for tastes" after every bite!


After dinner, Laurel played with her switch-operated fan (it does a cool light display, too). That seemed to be a pretty big hit as well:


Then we went downstairs, called Bob's folks, watched the rest of "Cars" (which we'd started earlier while dinner was cooking), and Laurel fell asleep. That was our Thanksgiving!

You know, I had expected that I would spend a lot of the day reflecting on last Thanksgiving, which of course was the last one with my mom. And I did, some. But more, what I found myself thinking about was the only other Thanksgiving when it was just the three of us, Thanksgiving 2000. Which you know, it's funny, I hadn't even been thinking about it - I've been telling people that the only Thanksgiving I'd spent without my mom was the one where Bob's sister got married (way back before my dad died). I think I tend to try to not think about that period too much. It was a hard day, although it had a magical ending. We spent a somber day, had a little dinner that folks at church had made up for us, and then trudged down to the NICU. And Laurel finally came out of her phenobarb coma that night and saw us for the first time! Anyway, the quiet day I think took me back to that time. How much things have changed!

Hope everyone had a great Thanksgiving!

 

 
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